Advancing the Science

Mayo Clinic Medical Science Blog – an eclectic collection of research- and research education-related stories: feature stories, mini news bites, learning opportunities, profiles and more from Mayo Clinic.

August 25, 2015

Sharing Research In Our Community

By Elizabeth Zimmermann

Mayo Clinic's three transformational centers – the Center for the Science of Health Care Delivery, the Center for Regenerative Medicine, and the Center for Individualized Medicine have joined forces in collaboration with Madonna Living Community in the development of a speaker series for their residents as well as members of the community. Meeting bi-monthly, Mayo Clinic speakers share their research on topics relevant to this audience.

madonnatowersThe speaker series kicked off on Thursday, August 20, with Dr. David Eton. He shared his work entitled, "What is the burden of treatment and how can we measure it?" to an interested crowd in Madonna's Sister Generose Auditorium.

This NIH-funded study, done in collaboration with the Hennepin County Medical Center (HCMC) in Minneapolis, involved 100 patients who participated in the research either as an interview subject or focus group member. As a social-health psychologist with expertise in the measurement of patient health-status and quality-of-life outcomes, Dr. Eton seeks to understand what "quality of life" means to the healthcare consumer with the goal of better tailoring care to the needs of the individual. He began his talk by defining treatment burden as two-fold:

  • Demands placed on a patient by treatment and self-care for a health condition or conditions, and
  • Impact of the demands on patient functioning and well-being (i.e., behaviorally, physically, psychologically).

In order to measure what treatment burden means to patients, particularly those with multiple chronic conditions, a comprehensive tool is needed, he said. Patient interviews and focus groups helped to inform the content of this new measure. These were conducted at both Mayo Clinic and HCMC, with the narrative data used to identify themes of treatment burden. From these themes, and an extensive review of existing literature on this topic, questions were developed and refined. The final result was a 78-question pilot questionnaire entitled the Patient Experience with Treatment and Self-care (PETS), which has recently been administered on a broad scale to patients with complex medical conditions requiring substantial self-care.

The next presentation in the Madonna Living Community's speaker series will feature Dr. Richard Weinshilboum from the Center for Individualized Medicine speaking on the topic of pharmacogenomics.

The public is welcome to attend this event, which will take place October 20, 2 p.m., Madonna Towers, 4001 19th Avenue NW, Rochester, MN 55901. Free parking is available in the Pax Christi parking lot along 41st Street NW.


etonDavid Eton, Ph.D., is an Associate Professor of Health Services Research at the Mayo Clinic and a faculty member within the Division of Health Care Policy and Research and the Mayo Clinic Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery.




Tags: About, Center for Individualized Medicine, Center for the Science of Health Care Delivery, collaboration, David Eton, Events, Madonna Living Communities, patient reported outcomes, People, quality of life, Richard Weinshilboum

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