In recognition of National Minority Health Month in April, a number of Mayo Clinic researchers participated in a virtual media briefing to discuss health care disparities that affect people who are members racial and ethnic minority populations in the United States.
The experts addressed health education, early detection and control of disease complications. These are some of the topics discussed:
Below are a few excerpts from their conversation.
Chyke Doubeni, M.B.B.S.
Director of the Mayo Clinic Center for Health Equity and Community Engagement Research
"We design health systems to exclude important segments of our population who need it most. And we need to look at how we create structures to meet people where they are, and the technology exists for us to do so. We need to change our mindset from 'We'll build it, and they will come' to a mindset where we reach people where they are. And that has to be very important."
Sharonne Hayes, M.D.
Cardiovascular disease researcher
"When I learned about cardiology, I learned about the traditional risk factors. And they talked about, hypertension, and that African Americans have more hypertension and Native Americans have more diabetes. And that's the reason that they have higher risk of cardiovascular disease. But, in fact, the prevalence of obesity, diabetes, or hypertension, has roots in things that have nothing to do with biology or genetics. They have to do with redlining, and living in neighborhoods that have poor access to safe exercise and physical activity, and food safety."
"What mother chose to live in an unhealthy environment? She did not. There are generations and generations of reasons that her people and her family were not allowed to buy or rent in places that were safer. And, so, if we take several generations back , we know that the risk of hypertension is increased among those who have experienced racism. There are studies that have been able to show that actually the experience of racism increases cardiovascular disease risk and risk factors."
Michele Halyard, M.D.
Radiation oncology researcher
"I think of Mayo in Arizona and its relationship with the Phoenix Indian Medical Center, for example. We send medical oncologists there to see cancer patients, particularly breast cancer patients, to help deliver care there. And some of those patients then wind up coming to us for care, as well. And, so, I think there is a responsibility for those who have more resources to share those resources with the community."
"Participation in clinical trials really revolves around issues of equity and disparities. And in order to make advances in bringing down some of the morbidity and mortality, or suffering and death from diseases, we do need everyone to be represented in clinical trials. Clinical trials often allow patients access to cutting edge therapies that can be life changing, and life saving, in many instances, and, so, to not have people participate in clinical trials, in some ways, lessens their ability to potentially get life saving therapies. But I think it's important, given the long standing distrust people of color have about the whole research process."
Edith Perez, M.D.
Hematology oncology researcher
"Black women have a slightly increased risk of developing triple negative breast cancer, compared to the rate in whites. But it's a matter of getting access to going to the clinics where treatment is available. Are they seeking care early enough, because the earlier we can diagnose it as cancer, the better the outcome. So, yes, cancer is some biology, but there's a lot of social determinants of health care that have impacted the differences in survival rates after diagnosis of breast cancer."
"In the reality of cancer the median is 66 years, but the reality in clinical trials is about 50 to 52 years. This is a gap that we have to continue to close because after we complete the clinical trials, we need to understand how the older or the younger populations are affected. It's also about ageism, that exists as a discriminatory factor in this world. We need to understand safety and efficacy for the older population, because they are the ones that were mostly affected by this disease."
Final comments from Dr. Doubeni
"One thing that is a national consciousness currently,is the issue of algorithm bias — the AI (artificial intelligence) things that we use in driving medical care, and it is more pervasive than you think. A lot of biases are built into the instruments, or to the algorithms that develop in populations that don't include enough diversity, to the extent that when you now use AI in everybody, including African American, Latinos and other groups, it can reinforce disadvantage and make health care worse."
"So it's multifaceted. We have to increase the volume of data by getting access to people. We have to make sure the studies are in enough people that when we generate these sorts of things, to use to automate care as we want to in the future with digital health technology, that it is actually helping people — not creating a systematically disadvantaged network."
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This article was previously published on the Mayo Clinic News Network.
Tags: Center for Clinical and Translational Science, Center for Health Equity and Community Engagement Research, Chyke Doubeni, community engagement, Edith Perez, health disparities, health equity, Michele Halyard, minority health, News, republished, Sharonne Hayes