December 9, 2020
Diversifying genomic medicine beyond genes
The work to improve health and health care is ongoing and ever-evolving. It takes many shapes, from streamlining delivery to improving care and pursuing inclusive medical research to help develop precision medicine for all populations. This was a key element of the Arizona Return of Actionable Variants Empirical, or RAVE, study, which brought genomic medicine to […]
Tags: biomedical ethics, Center for Individualized Medicine, clinical trials, diversity, DNA, genetics, genomics, health disparities, Iftikhar Kullo, Richard Sharp
January 24, 2020
The Compass offers direction on biomedical issues
By Advancing the Science contributor
By Jay Furst A compass, whether the old-fashioned kind in a brass case or the hands-free version on your dashboard, provides direction and helps you to find your way. The word’s Latin origin, though, is about more than navigation. It’s the root of the word “compassion,” which implies feeling, connectedness and presence. It’s that deeper […]
Tags: biomedical ethics, Center for Clinical and Translational Science, Center for Individualized Medicine, Daniel Hall-Flavin, Mayo Clinic Proceedings, research, Richard Sharp
August 27, 2019
Community voices guide use of biobank samples in research
Mayo Clinic supports biobanks—large collections of patient biological samples—near each of its three campuses in Arizona, Florida, and Minnesota, with the goal of supporting research to broaden the understanding of health and disease. Paired with each biobank, Mayo fields a community advisory board (CAB), whose members are recruited from the local community to help guide […]
Tags: biobank, Center for Individualized Medicine, community engagement, Richard Sharp, Sangre Por Salud, Suzette Bielinski
May 21, 2019
In many states, women can expect pregnancy to restrict their advance directives. Search online for what to do when getting ready for baby and you’ll find endless checklists of essentials every parent needs, from onesies and diapers to high tech strollers and baby monitors. The best lists also mention an important legal document that expectant […]
Tags: advance directive, biomedical ethics, Erin DeMartino, pregnancy, Richard Sharp
April 19, 2018
Direct-to-consumer genetic testing-a rapidly shifting landscape
Direct-to-consumer genetic or over the counter testing emerged in the early 2000s as a means of allowing consumers to access information about their genetics without the involvement of a physician. While early models were popular with consumers, they were controversial in medical and regulatory circles. In the January 2018 issue of Mayo Clinic Proceedings authors Megan Allyse Ph.D., […]
Tags: biomedical ethics, Center for Individualized Medicine, Matthew Ferber, Mayo Clinic Proceedings, Megan Allyse, precision medicine, Richard Sharp